Never Give Up

We are back home!

2006-10-19T06:35:00.000-07:00

Hello everyone! Well we are finally home! He is doing better. Well we got some answers and I also learned how life is going to be for us. He does not have a diagnosis yet, but we know its a malabsorbtion problem. He can't eat anything dairy, or crabs or anything that has sugar in it. Well the list that they gave me that he is allowed to eat is really ,really small. He has to be on the pump for 20 hrs. A day. He had some test done, but the results won't be in for a couple of weeks. This time around in the hospital I got to talk to some older kids with the same problem as Gabe to see how life has been for them. I also made friends with there parents. There was this one girl named Emily she was our neighbor. She is 11 yrs old. With the same problems as Gabe. She started around the same age as Gabe. Her mom said they have been in and out of the hospital since she was little. Once they get older it takes a toll on there body. Emily ended up having Diabetes and now she is having problems with her kidneys and bones. It's harder when they get older to be in control on what they eat. Also I have to worry about if he catches a stomach virus he needs to be admitted right away. He had lost a little over a pound in a week, but now that we have him on the diet and the pump he is gaining a little. Well he has to be seen on Monday to see how much he has gain. Then he goes back in Nov. Hopefully we get some test results soon. I am still planning on getting a second opinion at A I Dupont hospital in Delaware in Nov. Thank you everyone for your prayers!

Gabe being Admitted

2006-10-12T09:48:00.000-07:00

Hello everyone! Well Gabe woke up this morning with really bad diareah. he is not feeling great. he gets happy one moment and then he gets really tired. His GI Dr. called me and said she is going to start the admitting process now. I will know around 2:00 pm today when he will be admitted, it could be tonight or tomorrow. He is going to be at childrens hospital of philadelphia our second home. They have computers there that Ican use. I will keep everyone posted. Hope everyone has a great day!

Test Results

2006-10-11T16:40:00.000-07:00

The Dr. called me back the same day and told me that his platlet level is ok but not great. He said just to keep an eye on him and to bring him in for a follow up. He acted ok today. I called his GI Dr. today and she wants me to schedule for him to get a polycous breath test. more and more test. Well he is going to see the Genral Surgent on Wed. the 18th about the skin that keeps on growing around his g-tube. Thank you for all your prayers.
I also want to thank my best friend Colleen for giving me this idea to blog so my friends and family can see the update. It is actually a good stress reliever.

Worried

2006-10-10T17:37:00.000-07:00

AHHHHHHHHHHHHHHHH!!!! WELL I JUST GOT HOME FROM TAKING GABE TO THE DR.'S OFFICE. WE ONLY WHERE SUPPOSE TO GO TO GET HIS WEIGHT CHECKED. WHEN I WENT TO GET HIM DRESSED TO GO, I NOTICED THAT HE HAD LITTLE SPOTS ALL OVER HIS CHEST AND HIS BACK AND NECK AREA. IT LOOKED LIKE IT WAS FROM THE INSIDE OF HIS BODY. SO WHEN WE WENT TO THE DR.'S THEY SAID HE ONLY GAINED AN OUNCE, SO FAR HE HAS GAINED A POUND SINCE MAY, WHICH THEY ARE NOT HAPPY WITH. WHEN HE SAW THE SPOTS HE HAD ME TAKE GABE IMMEDIATLY TO THE HOSPITAL TO GET BLOOD WORK DONE. NOW I AM SITTING HERE WAITING FOR THE DR. TO CALL. HE SAID HE WILL GET THE RESULTS IN AN HOUR. IF THE TEST COMES OUT POSITIVE WE WOULD HAVE TO BE ADMITTED TO CHILDREN HOSPITAL OF PHILADELPHIA OUR SECOND HOME. I AM SITTING HERE AND PRAYING THAT EVERYTING WILL GO WELL. OH, HE IS GETTING TESTED TO SEE IF HIS PLATLET LEVEL IS LOW. I WILL LET EVERYONE KNOW ONCE I GET THE NEWS.

Life

2006-10-08T17:35:00.000-07:00

Life. My youngest son has a chronic illness and he has really taught me how important life is. i always was stressed and sad when my son started getting sick. Going to the hospital every week and sometimes staying there for 2 weeks was just making my mood down. However, watching him be so happy and you could never tell he was sick made me realize we shouldn't be moping around; he doesn't like it when we where sad. It woke me up when we almost lost him in May during surgery. Ever since then I have been loving life and I am more relaxed now. All the negative things that are going on with your life even if it's negative people you should just push it to the side and enjoy happiness. That is what I learned.

Sad Day

2006-09-09T17:34:00.000-07:00

Yesterday ( Sep. 8, 2006) I was talking to my friend in Fl and the other line beeps. I answered it and it was my youngest sons GI Dr. He had alot of biopsy's done 2 weeks ago and the results came in. I was not ready to hear what she had to say. She had told me that everything my son needs inorder to live, nutrients he can't absorb. They can't give him a diagnosis because he has mutiple of things going on. They are trying to find out why his body is doing this. he has been sick since dec. now i have lots of different feelings, sad, scared, lost, confused, frustrated, ect.... But he is a very happy child, you wouldn't even know he has some problems. well now i can just pray. I will know more on the 19th when i meet with the Dr. 's.